Systems

As is the case with many other diseases, there is a tremendous amount of exceptional effort underway to understand and treat T1D. But all too often, there also is a lack of coordination in these efforts, which leads to wasted resources, slowed progress and limits on what can be achieved in the quest to improve health outcomes and, ultimately, find a cure. Our systems portfolio seeks to improve and better integrate the research, treatment and support infrastructure of T1D and break down the systemic barriers that stifle therapeutic breakthroughs and impede patient care.

Supporting the T1D Exchange and Unitio

The T1D Exchange is a groundbreaking patient engagement platform designed to accelerate all aspects of drug and device development via an integrated system of people and institutions already working hard to decode different parts of T1D. The Exchange does this by integrating a Clinic Network of 65+ diabetes clinics across the U.S., a Clinic Registry with data from 26,000+ people with T1D, a Biorepository housing a collection of clinically annotated biosamples, and Glu, a patient/caregiver online community with thousands of members. Data generated by the Exchange are helping to improve standards of care and accelerating projects of academic and industry researchers worldwide. Initially created by the Trust, the Exchange is now part of a new standalone non-profit organization, Unitio, which is expanding the T1D Exchange model to other disease groups.

Strengthening the T1D Workforce

T1D is a complex disease and health care providers - particularly endocrinologists - are poorly reimbursed for the time they spend with T1D patients. Limited incentives for health care providers and a lack of research funding prohibit many from pursuing type 1 diabetes-specific careers. The Trust supports a range of approaches to prepare and support the next generation of T1D-focused researchers and health care professionals. We also are evaluating telemedicine solutions for improving the quality of care for people living with T1D.

Promoting Standards of Care

Currently, clinical practice is guided by outdated standards of care and treatment is hampered by an inconsistent and confusing patchwork of data and reports from T1D devices. Our program supports improved standards of care that include better staging of the disease as well as the establishment of universal criteria for device data that clinicians and people living with T1D can use to improve disease management.