Juvenile Diabetes Research Foundation Canada/Fondation De La Recherche Sur Le Diabete Juvenile Canada
Date of Award
Type 1 Diabetes, Improve Outcomes
Term of Grant
Access to Continuous Glucose Monitors for All Canadians
Life with type 1 diabetes (T1D) is burdensome, consisting of rigorous management of diet and exercise, daily insulin injections (through needles or insulin pumps) and continuous monitoring of blood glucose levels. Even with constant attention, people with T1D still run the risk of dangerously high or low blood sugar levels, which can lead to life-threatening complications. Continuous glucose monitoring (CGM) systems offer an advanced way for people living with diabetes to check glucose readings in real-time and over an extended period of time. This constant overview helps improve self-management of T1D by allowing patients greater control, relieving them of the anxiety that surrounds this disease and providing a better picture of personal glucose trends and early notification of oncoming lows or highs. Evidence shows that CGM devices improve the overall health of individuals living with T1D thanks to lowered HBA1C levels, greater time spent in the target ranges, fewer incidences of life-threatening hypo- and hyper-glycemia and a reduction in complications. At present, no Canadian province extends medical coverage for CGM systems, with the exception of the Yukon Territory, which recently announced a pilot project to provide free CGMs to residents under the age of 18. CGMs have also not been a standard offering by most Canadian private insurers; only recently have three Canadian insurance companies embraced CGM as a standard for claims. As well, since CGMs carry a hefty price tag ranging from $3,000 to $7,500 in Canada ? a cost that many Canadian families cannot afford ? resulting in low CGM usage throughout the country, despite evidence that it leads to improved glycemic control for those living with T1D. JDRF Canada has determined that the time to act is now. Building on the need for improved coverage and the momentum with private payers embracing CGMs, JDRF is launching a campaign that aims to build capacity in the health system by securing private and public coverage for CGMs for all Canadians. In order to execute this plan, JDRF will require an additional staff person, a National Manager, Government Relations & Advocacy, to oversee and manage our strategy for the development and execution of JDRF?s private and public reimbursement of CGMs. This role is part of a larger project that aims to ensure Canadians have access to, and are reimbursed for CGMs. The incumbent will report directly to the National Director, Government Relations and Advocacy and will implement a strategy in support of CGM reimbursement. JDRF respectfully requests support from the Leona M. and Harry B. Helmsley Charitable Trust to cover a portion of the employment costs of a new staff person who will be dedicated to executing this new initiative in year 1 (80%) and year 2 (50%) of a multi-year project. Revolutionary technologies like CGMs have the potential to transform the care of people with diabetes. With your support, JDRF will make history by enabling Canada to become a leader in global health innovation and bring us closer to our goal of free access to CGMs for all Canadians.