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Katholieke Universiteit te Leuven


Date of Award

08.05.2026

Program

Disease Management

Amount

$1,618,882.00

Term of Grant

36 months

Project Title

International Development and Validation Study of the Enhanced IBD-Disability Evaluation Tool

Project Description

The IBD Disk is a simplified, patient-reported version of the validated IBD Disability Index, which was originally developed as a visual consultation tool to assess disability related to Inflammatory Bowel Disease (IBD). However, its use as a research instrument or clinical endpoint is currently limited by methodological issues related to item selection, measurement concepts, and scoring. To overcome these limitations, this project aims to develop and validate a new tool, IBD RADAR, that is valid, reliable, and patient-centered, and that more effectively captures patients' perceptions of the burden of IBD than existing tools. This tool is intended for both clinical assessments and research applications.