National Alliance for Caregiving


Date of Award

01.28.2020

Program

Crohn's Disease, Disease Management

Amount

$94,899

Term of Grant

21 months

Project Title

A Circle of Care Guidebook for Caregivers of Children and Adolescents with Crohn’s Disease

Project Description

Little attention has been focused on the caregivers of patients with Crohn’s disease. This unpaid and under-recognized workforce support their loved ones through everything from assisting with daily activities of living to performing medical/nursing tasks, helping to plan and manage dietary and nutrition strategies, providing emotional support to the person receiving care, and assisting their child to transition to adulthood.